The Latest On The COVID-19 Outbreak From Around The World
Below will be a menu of buttons specifically created to navigate the COVID-19 information that is on our website. All the content can also be found using the navigation menu at the top of all the pages of the site.
Also there are buttons to go directly to the World Health Organization, Center for Disease Control, and Food & Drug Administration's websites where you can find more information on the COVID-19 pandemic.
In the next week or so I will be adding a few new pages just for COVID-19 news articles from all over the U.S.A. and parts of the world that are impacted most and we know that we have patrons who frequent the site.
If you do not see content from your country, please let us know and we will gladly add it. There is so much going on in the world, it is a lot to keep up with for 2 people. Volunteers would be greatly appreciated.
We will continue to work hard to bring you updates on COVID-19 as new information is released. Uploads and additions to our medical conditions library will be on hold for the time being until the COVID-19 virus infection numbers start to drop.
We apologize for the inconvenience, but we feel it is important that everyone is informed on the pandemic and to effectively do our jobs, we have to choose between one or the other, as our staff is very limited. If you would like to be a contributor to Wetzel's EDS Life, please send a message on one of our social media accounts, we see those right away, the email we only check once a day.
We will get through this. Together we are strong and we will prevail. If you need someone to talk to, there are other people on our instant messenger who you can reach out to. The IM is set up to be one-on-one so that no one else can spy on your conversation. Also there are hundreds of people in groups on FB associated with this foundation, and twitter.
If you need help, just ask, we are here for you, I will never turn anyone who needs help away. I will help you to the full extent of my ability, whether it is with research, finding a doctor, a local support group, that is why I created this foundation.
Resource & Partner Links
Click images to go to the links.
Sara Geurts was diagnosed with Ehlers Danlos Syndrome when she was 10 years old. & the EDS causes her skin to sag. And instead of hiding it from the world, she turned it into a modelling career. You can go to her instagram by clicking the button below.
Success Through Adversity!
When you suffer from an underdiagnosed or rare condition, you can feel powerless, and isolated. It is not uncommon for medical professionals to not be informed about complex diseases and conditions in other fields of medicine than their own.
To give back that power to people with these conditions is our goal. I tell people all the time, "The best way for your doctor to help you, is for you to help your doctor help you". Having access to accurate, credible information can do just that. Doctors spend years in school and residency. And the human body is a very complex machine. By making information about EDS and it's related conditions easy to access in one central source, it is our hope that patients can take back their lives and live them to the fullest. No one should have to suffer because of ignorance.
We work very hard and tirelessly to find the latest information and breakthroughs so you don't have to spend hours in a search engine. By spreading awareness, we can help to relieve the suffering for all. Knowledge is power and when it's used properly, it makes all the difference in the world.