Disclaimer

The content on this website is for educational purposes only and should not be used as a substitute for medical advice. Please consult with your healthcare provider prior to initiating any of these treatments. The use of this website does not imply nor establish any type of doctor-client relationship.

Updated 10-06-19

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¬©2019 by Wetzel's EDS Life.  Some images and videos may be from other sources, I do not claim ownership of them. If the owners of the different types of media wish for me to take them down, please email me at edslife2019@gmail.com with the specifics information and I will be happy to do so. It is my hope that posting pictures from multiple sites and sources will help spread awareness.

Have a questions or want to report something? Send me an email at edslife2019@gmail.com

WETZEL'S EDS LIFE WEB SOURCES

Here are more great sources for information and support, as well as resources to get accurate knowledge on all things EDS and related illnesses.

Drugs.com

Knowing what you are taking when it comes to medications and supplements, whether they are prescription or OTC is very important. Also knowing how they interact with each other and how they can affect you is important too. This website is the best source I have ever found and have been using it for close to ten years. These days all medications with a separate set of papers that give you a list of warnings with side effects, warnings, possible drug interactions, and so forth. However, they are not always complete. This website is the most comprehensive source of drug information available to the average individual.

 

 

You can create a profile for free, list medications you have been on, are on, or are researching, and it will tell you how they will interact with everything else that you are taking. Whether the reaction would be mild to severe. It has helped me to help my doctor find effective treatments for treating various issues I have that traditional treatments have not been effective in treating. It is accessible via PC and mobile app. Click the button to get started today!

HEMPWORX

CBD Pain Management

Using CBD as a pain management regimen can be a controversial subject. However, it is legal with an RX in 46 states and legal for recreational use in 8 states. I live in PA where it is recreationally legal. I use CBD for pain management and it works very well for me. A friend of my wife and I have a business selling CBD and hemp-based products. Hemp has many health benefits and this site offers a wide variety of products. Click the button below to learn more.

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MAST CELL ACTION

Mast Cell Action is an information and support source for those who suffer from Mast Cell Activation Syndrome. Mast Cell Activation Syndrome is common in EDS patients. In lamens terms, it is an overreaction to many substances that the body can be exposed to. Like an allergic reaction similar to anaphylaxis. In patients with MCAS, excessive amounts of histamine are released when the body interacts with things that it doesn't like. There are a variety of triggers. Exercise, foods, medications, chemicals and environmental factors can all trigger an MCAS response.

 

The trick to dealing with this disorder is finding your triggers, which is challenging and exhausting. This web page is a great source of information to get the low down on understanding this disorder. I have recently diagnosed with this myself, and I didn't really understand it when the doctor explained it to me. But this web page definitely helped me to understand better. 

DYSAUTONOMIA INTERNATIONAL

Your Go-To Source for information on POTS, Neurocardiogenic Syncope, Vasovagal Syncope, Inappropriate Sinus Tachycardia, Pure Autonomic Failure, Multiple System Atrophy, Autoimmune Autonomic Gangiopathy, and Dysautonomia. You can also find such things as a support group, a physician, and donate to Dysautonomia research.

National Organization for Rare Disorders

Medtronic Spinal Cord Stimulation

Spinal Cord Stimulation can be an effective means of pain intervention. It is not effective in all patients and does require surgery for implantation. I personally have this device and I love it. It took some time to get used to but it was worth every penny. Click the button to the right to learn more. Talk to your physician if you wish to explore this as an option for pain management. 

INSPIRE PATIENT ADVOCACY GROUPS

The Mighty

The Mighty is an excellent way to socialize with other people who are going through the same struggles you are. It also helps you keep up to date with the latest news in the medical world. News about changes in insurance, treatments, billing and coding are just a few things that you can find on 'The Mighty'.