Disclaimer

The content on this website is for educational purposes only and should not be used as a substitute for medical advice. Please consult with your healthcare provider prior to initiating any of these treatments. The use of this website does not imply nor establish any type of doctor-client relationship.

Updated 10-06-19

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©2019 by Wetzel's EDS Life.  Some images and videos may be from other sources, I do not claim ownership of them. If the owners of the different types of media wish for me to take them down, please email me at edslife2019@gmail.com with the specifics information and I will be happy to do so. It is my hope that posting pictures from multiple sites and sources will help spread awareness.

Have a questions or want to report something? Send me an email at edslife2019@gmail.com

WETZEL'S EDS LIFE WEB SOURCES

For years, I have served as a useful source to those seeking inspiration, help, or advice. I finally decided to own that role and be intentional about it. I started writing about my passions, my thoughts, and curious wonderings about our world. I founded Wetzel's EDS Life with a mission to give others a taste of what goes on in my mind and what I have discovered, and I have been at it ever since.

 

Take some time to explore the blog, read something interesting, and feel free to reach out if you would like to collaborate on a project together.

EHLERS DANLOS SYNDROME AWARENESS FACEBOOK PAGE

This is the First EDS support group I created way back in 2010. The reason for its creation was to spread awareness and information to those who have EDS or family members and friends affected by this debilitating disease. Now we are almost 2,000 strong and constantly growing. please come be a part of our community. Join, Like and Share.

NATIONAL INSTITUTE OF HEALTH GENETIC AND RARE DISEASES INFORMATION CENTER

Finding information on Rare Diseases can be challenging. There is plenty of information out there. However, finding a reputable source with accurate information is important. This website is an excellent source on all the latest information on rare diseases and other diseases and syndromes. 

EHLERS DANLOS FAMILY SUPPORT FACEBOOK GROUP

I created this group as a platform for Family and friends of people who have EDS to be able to discuss and share information. Also, it's a good place to come when you just need to talk to someone who knows what you are going through.

St. Jude's Children's Hospital

Donate today and help provide quality care to children who suffer from Brain Tumors, Cancer, Infectious Disease, Immunodeficiency, Blood Orders and More. All Children deserve to have a chance at a healthy life. Donate Today!

Ehlers Danlos C.A.R.E.S Network

Ehlers Danlos Syndrome Network CARES is a non-profit organization whose main objective is to educate the public and the medical professional on Ehlers Danlos Syndrome. They also educate the public on the need for funding to further research and awareness. Ehlers Danlos Syndrome was once considered a rare disease. However recent studies and physician discussion has recently shown that it's not so much rare disease, as an underdiagnosed one. Ehlers Danlos Syndrome Network C.A.R.E.S.

EHLERS DANLOS SOCIETY YOUTUBE CHANNEL

The Button below will take you to the Ehlers Danlos Society Youtube Channel where you can access past webinars, Global learning conferences, and other informational videos.