Disclaimer

The content on this website is for educational purposes only and should not be used as a substitute for medical advice. Please consult with your healthcare provider prior to initiating any of these treatments. The use of this website does not imply nor establish any type of doctor-client relationship.

Updated 10-06-19

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©2019 by Wetzel's EDS Life.  Some images and videos may be from other sources, I do not claim ownership of them. If the owners of the different types of media wish for me to take them down, please email me at edslife2019@gmail.com with the specifics information and I will be happy to do so. It is my hope that posting pictures from multiple sites and sources will help spread awareness.

Have a questions or want to report something? Send me an email at edslife2019@gmail.com

Dr. Ross Davis, Cardiologist

Institute For Advanced Cardiovascular Care

2375 Champion Blvd, Auburn, A.L.

Phone Number 324-321-3600

 

Dr. Nancy Sawyer, Internist

The Mitral Valve Prolapse Center Of Alabama

880 Montclair  Rd. Suite 370 Birmingham A.L.

Phone Number 205-592-5765

 

Dr. Paula Moore, Internist

The Mitral Valve Prolapse Center Of Alabama

880 Montclair Rd. Suite 370 Birmingham A.L.

Phone Number 205-592-5765

 

 

Dr. Christopher C Erikson, Ep Cardiologist

Pediatric Electrophysiology & Pacing University Of Arkansas For Medical Sciences

Arkansas Children's Hospital

800 Marshall St. Little Rock A.R.

Phone Number 501-320-1479

 

Dr. Stephen Greer, Cardiologist

9501 Lile Drive, Suite 600, Little Rock A.R.

Phone Number 501-227-7596

 

Dr. Kaitalin Juhasz-Pocsine, Neurologist

The University of Arkansas For Medical Sciences

4301 West Markham St. Slot 500, Little Rock A.R. 

Phone Number 501-686-5838

 

Dr. Elissa Gartenberg, Family Medicine, Medical Acupuncture

Modern Family Medicine

7522 E 1st St. Scottsdale, A.Z. 85221

Phone Number 602-363-1631

 

Jenna Lightfoot PA-C, Family Practice

Summit Medical Group- Estrella

14541 W. Indian School Rd. Suite 600

Goodyear A.Z. 85395

Phone Number 623-535-5599

 

Dr. Brent Goodman, Neurologist

Specializes In Autonomic Disorders

Mayo Clinic Scottsdale A.Z. Campus

Scottsdale A.Z.

 

Dr. Timothy Ingall, Neurologist

Mayo Clinic Scottsdale, 13400 E. Shea Blvd

Scottsdale A.Z. 

Phone Number 480-301-8451

 

Dr. Jerrod Winter, Director of Dysautonomia Testing & Treatment

Pima Heart Associates

2404 E. River Rd, Bldg 2, Tuscon A.Z. 85718

Dr. Nichelle Renk, Anesthesiologist

Algone, 4001 Dale St. Suite 105.

Anchorage A.K. 99508

Affiliates: Providence, Regional

Phone Number 907-770-1152

Dr. Thomas Lowder PhD

Pulmonary Function, Immunology and Muscle Physiology

University of Central Arkansas

201 Donaghey, Farris Center 101

Conway A.R. 72035

Phone Number 501-450-5713

 

 

Dr. Derik Anderson, DC

Functional Rehabilitation and Chiropractics

Muscle and Joint Clinic

10G St. San Rafael, C.A. 94901-1720

Phone Number 415-488-5372

 

Dr. George Davis, Orthopedist

Children's Hospital Of Los Angelas

3699 Wilshire Blvd, Suite 850

Los Angelas C.A. 90010

Phone Number 310-854-5090

 

Dr. Gaja Anzel, Endocrinologist

Yucaipa, C.A.

(Knowledgeable in POTS, Diabetes, and Thyroid)

 

Dr. Thomas Ahern, Cardiologist

Specializes In POTS, Arrhythmias and Implants

Scripps Clinic, Torry Pines

10666 N. Torry Pines Rd. SW 206

La Jolla, C.A. 92037

Phone Number 858-554-5039

 

Scripps Clinic, Encinitas

310 Santa Fe Drive, Ste 312 598

Encinitas, C.A. 92024

Phone Number 760-633-7275

 

Dr. Safwan Jaradeh, Neurologist

Specilizes in Autonomic Function

Palo Alto, C.A. 

Affiliated with Stanford Hospital

 

Dr. Karen Friday, Endocrinologist

Stanford University Medical Center

3A260 MC 5319 , Palo Alto C.A.

Phone Number 650-723-7111

 

Dr. David Camom, EP Cardiologist

1245 Wilshire Blvd, Suite 703

Los Angelas C.A. 

Phone Number 213-977-0419

 

Dr. John Thampi, EP Cardiologist

30 River Park Place West, Suite 330

Fresno C.A. 

Phone Number 559-434-6232

 

Dr. Aaron Banks, Pediatric Cardiologist

4050 San Dimas St. Suite B

Bakersfield C.A. 

Phone Number 703-581-7316

 

Dr. William Stuppy

1136 W. Sixth Suite 401, Los Angelas C.A.

Phone Number 310-260-0033

 

Dr. David Schmidt, Cardiologist

Cabrillo Cardiology Heart Institute

2241 Wankel Way, Oxward C.A. 

Phone Number 805-983-0922

 

Dr. Andrew White, Allergist/ Immunologist

Specializes in POTS & MCAS

Scripps Clinic Carmel Valley

3811 Valley Cantre Dr. San Diego, C.A. 92130

Phone Number 858-764-9010

 

Dr. Catherine Karlmov, Clinical Genetics, OB/GYN

Children's Hospital of Los Angelas

4650 Sunset Blvd #90

Los Angelas C.A. 90027

Affiliations; Children's Hospital Of Los Angelas, Keck Medical Center

Phone Number 323-361-2178

 

Dr. Harold Craft, Anesthesiology, Pain Management

Laser MD Pain Relief

1821 Wilshire Blvd # 300, Santa Monica C.A. 90403

Phone Number 213-550-5600

 

Dr. Gloria Tucker, Prolotherapy, EDS, Hypermobility

250 Bel Marin Keys, Novato C.A. 94949

Phone Number 415-506-4907

 

Dr. Carmine Van Deven, Family Medicine, Neuromuskuloskeletal Medicine

1956 Union St. San Francisco, C.A. 94123

Phone Number 415-921-1446

 

 

Dr. Caroline Creager, DPT

Physical Therapy Doctors

247 Mountain Ave, PO Box 1319, Berthoud, C.O. 80513

Phone Number 970-532-2533

 

Dr. Alex Lanton, DPT

Atlas Physical Therapy

34015 S. Quebec St.  Denver C.O. 80207

Phone Number 303-322-4900

 

Allison Rector, MPT, Certified Orthopedic Manual Therapist,

Orthopedic Clinical Specialist

ProActive Physical Therapy, LLC

9320 Grand Cordera Parkway, Suite, 125

Colorado Springs C.O. 80924

 

ProActive Physical Therapy, LLC

1808 Woodmoor Dr, Suite 130

Monument, C.O. 80132

Phone Number 719-535-2757

 

Dr. Jill Schofield

Center For Multisystem Disease LLC, Lowry Medical Center

8101 E. Lowry Blvd. Suite 250. Denver C.O. 80230

Phone Number 303-366-6633

 

Scott Rezac, PT, DPT, OCS FAAOMPT, CSCS

Board Cert.  Orthopedic Certified Specialist

Fellow of the American Academy of Orthopedic Manual Physical Therapists

Rezac & Associates Physical Therapy

855 Citadel Dr. E. Colorado Springs, C.O. 80909

Phone Number 710-465-1502

 

Dr. Kimberly Saunders, DPT / Physical Therapy

Foothills Orthopedic and Sports Therapy

3938 JFK Parkway, Ft Collins, C.O. 80525

Phone Number 970-207-1500

 

Dr. Sara Levine, MPH, General Pediatrics & Adolescent Medicine

Greenwich Adolescent Medicine

239 Glenville Rd. Greenwich C.T. 06831

Phone Number 203-532-1919

 

Eloise Stager, LMT, CST-D

CranioSacral Therapy

CT Center for CranioSacral Therapy

4 Main St. New Milford, C.T. 06784

Phone Number 860-367-2926

Dr. S. Shar Hashemi, FACS

Nerve Bone & Joint Institute DC

3 Washington Circle NW, Suites 207-208

Washington DC, 20037

Affiliations: DCHUX, George Washington University Hospital

Phone number 202-955-6001

 

Dr. Noah Raizman, MFA, Orthopedic Surgery, Hand Surgery

The Centers for Advanced Orthopedics

1850 M St NW. Suite 750, Washinton, D.C. 20036

Affiliations: Sibley Memorial Hospital, George Washington Univ. Hosp.

Georgetown Univ. Hosp.

Phone Number 202-835-2222​

Dr. Alan Pocinski, Internist

2141 K St. N.W. DC, Washington D.C.

Phone Number 202-223-2282

Dr. Jeffrey Moak, Pediatric E.P. Cardiologist

Children's Hosp. of Washinton

111 Michigan Ave. NW #200, Washington D.C. 

Phone Number 202-476-2090

 

Dr. Paldeep Atwal, Clinical Genetics, Medical Biochem Genetics, Internal Med.

The Atwal Clinic

4110 Southpoint Blvd, Suite 118. Jacksonville F.L. 32216

Phone Number 904-364-9985

 

Dr. Inman, FACMG, Medical Genetics, Internal Medicine

The UniversityOf Miami, Mailman Center, Connective Tissue Disorder Clinic

1501 NW 12th Ave.

Miami F.L. 33137

 

The University of Miami, The Lennar Foundation Medical Center, Adult Genetic Dis.

5555 Ponce De Leon Blvd

Coral Gables F.L. 33146

Phone Number 305-243-6006

 

Dr. Ross Hauser

Prolotherapy, Platelet Rish Plasma, Stem Cell Therapy, Nerve Release, and Regeneration Injection Therapy, Digital Motion X-Ray, Cervical Realignment Therapy

Caring Medical Regenerative Medicine Clinics

9738 Commerce Center Ct, Ft Myers F.L. 33908

Phone Number 239-303-4069

 

Dr. Marlon Pereira, DPT

The University of Miami, U Health Tower

1400 NW 12 Ave, Suite 1301

Miami F.L. 33136

Phone Number 305-689-5635

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 


 

 

 

 

 

Marcia Perretto, PT, DPT, COMT

Ehlers Danlos Syndrome, Ball joints, Spinal Disorders, Orthopedics

Actify PT, LLC

7000 West Palmetto Park Rd. Suite 210

Boca Raton F.L. 33433

Phone Number 561-366-2435

 

Dr. William Cheshire, Neurologist

Specializes in Autonomic Disorders

Mayo Clinic, Jacksonville Dept. of Neurology

4500 San Pablo Rd.  Jacksonville F.L.

 

Dr. Fred Kusumoto, E.P. Cardiologist

Mayo Clinic, Jacksonville Campus Cardiology

7 E. 4500 San Pablo Rd. Jacksonville F.L.

Phone Number 904-953-0323

 

Dr. Charles Randy Thompson, Internist

9706 N. 9th Ave. Suite A-3, Pensacola F.L.

Phone Number 850-476-8200

 

Dr. Sinara Gursoy, E.P. Cardiologist

Naples international Cadiac Electrophysiology LLC

331 Tamiami Tri N. Suite 201, Naples F.L.

Phone Number 239-643-9977

 

Frederick Stahlman, PT, CST-D

Physical Therapy, CranioSacral Therapy

The Upledger Institute International Clinic

11211 Prosperity Farms Rd. D 223 

Palm Beach Gardens, F.L. 33410

Phone Number 239-398-3154

 

Dr. Fran Kendal, Clinical Biochemical Genetics

VMP Genetics

5779 Chamblee Dunwoody Rd. Suite 110

Atlanta G.A. 30338

Phone Number 404-793-7800

 

Dr. Michael McConnell, Pediatric Cardiology

Michael E. McConnell, M.D. Associate Prof. of Medicine

Emory University School of Medicine

Sibley Heart Center Cardiology

2835 Brandywine Rd. Suite 300, Atlanta G.A. 30341

Phone Number 404-256-2593

Fax 770-488-9443

 

Dr. Katie Vitousek, DPT, Physical Therapy, Women's Health, Lymphedema

Club Rehab Inc. 

79-7422 Marnalahoa Hwy. Kealakekua, H.I. 96750

 

Club Rehab Inc.

75-5699-Kopiko St. Lailua-Kona, H.I. 96740

Phone Number 808-322-8400

 

Catherine Lewan, PT, DPT, C-IAYT

Hypermobility Syndrome, EDS, Dysautonomia, POTS, Pelvic Floor Dysfunction

Chicago Physical Therapists

3717 N. Ravenwood, Chicago I.L. 60640

Phone Number 773-770-3682

 

 

Michelle Satterly, ARNP, Family Medicine

Specializes in Connective Tissue Dis. Osteogenesis Imperfecta,

Autoimmune Dis. Psych, Immunology, & Pediatrics

Rock Island Family Medicine

2560 24th St. Suite 102, Rock Island I.L. 61201

Affiliations: Unity Point Hospital

Phone Number 309-779-4150    

 

Dr. Janice Gilden, Geneticist

Finch University of Health Sciences

The Chicago Medical School

3333 Green Bay Rd 2, # 111 E. North Chicago I.L.

Phone number 847-688-1900

Extension 84574

 

Dr. Barbara Deal, Pediatric Cardiology

Children's Memorial Hospital

2300 Children's Plaza, Chicago I.L.
Phone Number 773-880-4553

 

 

Wendy Wagner, PT, MPT, Pediatric Physical Therapy, and EDS PT.

Physical Therapy Solutions

107 S. 11th St, Suite 1. Manchester I.A. 52057

Phone Number 563-927-1499

 

Dr. William Talman, Neurologist

The University of Iowa Hospitals and Clinics

200 Hawkins Dr. 2100 RCP Iowa City, I.A. 

Phone Number 319-356-8450, 319-356-2571

 

Elain DeSario, OD, ABO, Optometry 

Louisa Eye Care

112 S. Vinson Ave. Louisa, K.Y. 41230

Phone Number 606-638-4731

 

 

Dr. Michael April, Pain Management

Pain and Injury Center of Greater Washington

6000 Exec. Blvd. #602, Rockville M.D. 20852

Phone Number 410-884-0000

 

Dr. Claudia Austin, MPH

Doctors community Hosp.

1010 Wayne Ave. Suite 230. Columbia M.D. 20910

Affiliations: Washington Adventist Hosp. Shady Grove Adventist Hosp. 

Sinai Hospital Baltimore 

Phone Number 240-499-4191

Fax 999-511-6783

 

Jennifer Balducci, PT, Cert MDT, Orthopedics

914 Bay Ridge Rd. Suite 212. Annapolis M.D. 21403

Phone Number 410-280-0914

 

Dr. Jan Dommerholt, PT, DPT, DAIPM

Bethesda Physiocare

4405 East West Highway, Suite 403. Bethesda M.D. 20814-4535

 

 

Physio Fitness

11140 Rockville Pike, Suite 303. Rockville M.D. 20852

Phone Number 301-656-5613

 

 

Michelle Finnegan, Physical Therapist

Bethesda Physiocare

4405 East West Highway, Suite 403. Bethesda M.D. 20850

Phone Number 301-656-5613

 

Dr. Clair Francomano, Geneticist

Ehlers Danlos Society Center for Clinical Care and Research

Harvey Institute for Human Genetics, Greater Baltimore Medical Center

6701 N. Charles St. Suite 2326, Towson, M.D. 21204

Affiliations: Member of the International Consortium on EDS and Related Disorders

Phone Number 443-849-3131

 

Dr. S. Shar Hasherni, FACS

Nerve and Bone Institute, Maryland

7500 Greenway Center Dr. Suite 520. Greenbelt M.D. 20770

Affiliations: DCHUX, George Washington University Hospital

Phone Number 301-220-2127

 

Dr. Fraser Henderson, Neuro

Specializes in Craniocervical, Atlantoaxial, & Spinal Instability

The Metropolitan Neurosurgery Group

1010 Wayne Ave. Suite 420, Silver Spring, M.D. 20910

Affiliations:

Doctors Community Hosp, Holy Cross Hosp. Greater Baltimore Med Center,

Member of International Consortium on EDS and Related Disorders

Phone Number 301-557-9049

 

Nathan Mayberry, PT, DPT, CMTPT

Physical Therapy

Physio Fitness

11140 Rockville Pike, Suite 303. Rockville M.D. 20850-3148

Phone Number 301-231-9300

 

Dr. Eric Singman, MD, PhD

Neuro-Ophthalmology

Wilmer General Eye Services, John's Hopkins Hospital

General Eye Services Division, Wilmer B-29

600 N. Wolfe St. Baltimore M.D. 21287

Affiliations: John's Hopkins Hospital

Phone Number 410-955-5080

 

Anne Wellington-Goldsmith, PT, MPT

Arthritis and Rehabilitation Therapy Services

Arthritis and Rheumatism Associates P.C.

2730 University Blvd West, Suite 714

Wheaton M.D. 20906

Phone Number 301-942-2520

 

 Dr. Laura Kragie, MD
Translational Medicine
EndoHealth MD
464 COMMON ST #125. BELMONT, MA 02478
Phone Number 978-806-4053

 

 

Dr. Jeff Milunsky, MD
Clinical Genetics, Molecular Genetics
Center for Human Genetics
840 Memorial Drive, Suite 101
Cambridge, MA 02139
Phone number 617-492-5106

 

Dr. Shanda Dorff, MD
Family Medicine
Complex Cares, LLC
10417 Excelsior Blvd. Ste 3
Hopkins, MN 55343
Phone Number 651-756-9596

 

Dr. Kathleen Hopkins, DO
Board certified in Family Practice, Certified Functional Medicine Practitioner
Minnesota Personalized Medicine
1409 Willow Street # 501
Minneapolis, MN 55403
Phone Number 612-345-5029

 

Dr. Susan Sencer, MD
Hematology, Oncology, POTS, Hypermobility
Cancer and Blood Disorders Program, Children’s Minnesota
2530 Chicago Ave S. Minneapolis, MN 55404
Phone Number 612-813-5940
Affiliations: Children’s Minnesota

Member of the International Consortium on EDS and Related Disorders.

 

Dr. Richard Anderson, MD
Neurological Surgery

Practice / Clinic 1
Department of Neurosurgery, Columbia University
710 West 168th Street, New York, NY 10032

 

Practice / Clinic 2
Neurosurgeons of New Jersey
1200 East Ridgewood Ave
2nd floor, Ridgewood, NJ 07450

Phone Number212-305-0219
Affiliations:

New York Presbyterian Hospital, Columbia UniversityMorgan Stanley Children’s Hospital of New YorkSt. Joseph’s Children’s Hospital

 

Dr. Meghan Mizrachi, DPT
Physical Therapy
Zion Physical Therapy
525 Washington Boulevard
2nd Floor, Jersey City, NJ 07302
Phone Number 203-494-2747

 

Bonnie Nasar, RD
Nutrition, Dietetics, EDS, POTS, Mast Cell Diseases
Nasar Nutrition
301 Professional View Drive
Freehold, NJ 07728
Phone Number 732-481-2632

 

Dr. Andrew Sharobeem, DO
Rheumatology
Arthritis & Osteoporosis Associates
4247 US 9N. Bldg 1 Freehold, NJ 07728
Phone Number 732-780-7650

 

Dr. Lawrence Afrin, MD
Hematology, Oncology, Mast Cell Disease
Armonk Integrative Medicine
99 Business Park Drive, Armonk, NY 10504
Phone Number 914-730-7390

 

Dr. Scott Bienenfeld, MD
Psychiatry, Addiction Medicine
The Recovery Spot
67 Irving Place, FL2. New York, NY 10003
Phone Number 917-446-6829

 

Dr. Svetlana Blitshteyn, MD
Neurology, Autonomic Disorders, Headache, Neuropathy
Dysautonomia Clinic and Amherst Neurology
PO Box 441, Getzville, NY 14068
716-531-4598

 

Dr. Paolo Bolognese, MD
(516) 321-2586
Chiari and EDS Neurosurgical Center
1991 Marcus Avenue, Suite 108
Lake Success, NY 11042

Affiliations: South Nassau Communities Hospital

Member of the International Consortium on EDS and Related Disorders.

 

Dr.George Cheriyan, DO
Neuromusculoskeletal Medicine, Osteopathic Manipulative Medicine
New York Osteopathic Medicine
1044 Franklin Avenue, Suite 214
Garden City, NY 11530
516-877-1111

 

Dr. Jenna Cangiano, DPT
Orthopedic and neuromuscular conditions
I Heart Physical Therapy
131 West 33rd Street, 14th Floor, New York, New York 10001
212-695-0044

 

Suhadee (Su) Henriquez, LCSW
Cognitive Behavioral Therapy (CBT), Dialectical Behavioral Therapy (DBT), Prolonged Exposure (PE), Acceptance and Commitment Therapy (ACT)
Practice / Clinic 1
Multicultural CBT-DBT LLC/ The Flying Psychotherapist
67 Irving Place 2nd Floor, New York, NY 10003
774-722-8328

Member of the International Consortium on EDS and Related Disorders.

 

Dr. Anne Maitland, MD, PhD
Allergy, Immunology
Comprehensive Allergy & Asthma Care
200 South Broadway Ste 200

Tarrytown, NY 10709
914-631-3283
Affiliations: cahn School of Medicine at Mt. Sinai

Member of the International Consortium on EDS and Related Disorders.

 

Dr. Norman Marcus, MD
Pain Medicine
Norman Marcus Pain Institute
30 E. 40th Street, Ste 1100
New York, NY 10016
212-532-7999
Affiliations: Weill-Cornell Medicine

Member of the International Consortium on EDS and Related Disorders.

 

Angela Oddone, LCSW
psychotherapy, counseling, clinical social work, case management
Angela M. Oddone LCSW / Resiliency Strategies LLC
140 Rockingham Street
Rochester, NY 14620
585-360-2900

 

Bernadette Riley, DO, FACOFP
Family Medicine and Osteopathic Manipulative Treatment
Director of Ehlers-Danlos Syndrome /Hypermobility Treatment Center at NYIT
NYIT College of Osteopathic Medicine Ehlers-Danlos Syndrome Treatment Center
Roland Health Care Center
Old Westbury, NY 11568
516-686-3894

 

Leslie Russek, PT, DPT, Ph.D., Orthopaedic Specialist
Physical Therapy
Canton-Potsdam Hospital
49 Lawrence Avenue
Potsdam, NY 13676
315-261-5460

Affiliations: Canton-Potsdam Hospital

Member of the International Consortium on EDS and Related Disorders.

 

Dr. Matthew Snyder, PsyD, LPCS
Mental Health
Matthew T Snyder, LPCS
1915 George St, Hendersonville, North Carolina 28792
828-222-0401

Member of the International Consortium on EDS and Related Disorders.

 

Dr. Subinoy Das, MD
Sinus disease, otolaryngology-head, and neck surgery
US Institute for Advanced Sinus Care and Research
974 Bethel Road, Suite E, Columbus, Ohio 43214
614-538-2424 x1151
Affiliations:

, Riverside Memorial HospitalDublin Methodist HospitalNationwide Children’s Hospital

 

Lindsay Hastings, LMT, Certified Bowenwork Practitioner
LMT, Certified Bowenwork Practitioner

Practice / Clinic 1:
Phoenix BodyWork & Apothecary
4434 Carver Woods Dr
Suite 300
Blue Ash, Ohio 45242

 

Practice / Clinic 2:
Phoenix BodyWork & Apothecary
31 E Mulberry St
Lebanon, Ohio 45036

513-507-7342

 

Dr. Jennifer Lobert, MD
Rheumatology; Internal Medicine
Jennifer Lobert MD LLC / Comprehensive Musculoskeletal Care
9403 Kenwood Road
Suite D105, Blue Ash, OH 45242
513-318-1695

Hospital affiliations: The Christ Hospital

 

Dr. Osvaldo Schirripa, M.D., M.S.
Clinical and Molecular Genetics
Central Oregon Clinical Genetics Clinic
143 SW Shevlin-Hixon Drive, Suite 203, Bend, OR 97702
541-678-5417

 

Dr. Nicholas DePace, MD, FACC
Cardiology, Autonomic Dysfunction, POTS, Ehlers-Danlos Syndrome, Chronic Fatigue Syndrome

Practice / Clinic 1
Franklin Cardiovascular Associates, PA
2300 S. Broad Street, Suite 201
Philadelphia, PA 19145

 

Practice / Clinic 2
Vineland Office
2848 S. Delsea Drive
Vineland, NJ 08460

 

Practice / Clinic 3
Sewell Office
438 Ganttown Rd
Suite 8 & 9
Sewell, NJ 08080
(856) 589-6034

 

Dr. Aviva Gaskill, PhD
Psychologist
Aviva Gaskill, PhD
308 E. Lancaster Ave, Ste 200
Wynnewood, PA 19096
484-679-6299

 

Marta Kolthoff, MD
Clinical Genetics
Allegheny Health Clinic
West Penn Hospital
4800 Friendship Ave GR59 Mellon Pavilion
Pittsburgh, PA 15217
412-578-3951
Affiliations: West Penn Hospital

 

Dr. Eugene H. Usow, D.O. Family Medicine

Knowledgable in EDS 

WellSpan Family Medicine Chanceford

10 Muddy Creek Forks Rd

Brogue P.A. 17309

Phone Number 717-812-5020

 

Dr. John Bobbin, Non-Invasive Cardiology

POTS, Dysautonomia

Apple Hill Medical Center, WellSpan Medical System

25 Monument Rd, Suite 200

York P.A. 17309

Phone Number 717-851-2441

 

Dr. Arnold G. Salotto, Neuro and Spinal Surgeon

Specializes in Spinal Implants

WellSpan Neurosurgery

228 St. Charles Way, Suite 300

York P.A. 17402

Phone Number 717-812-5400

 

Dr. Joseph P. Krzeminski, Neurosurgery

Specializes in Spinal Implants

WellSpan Neurosurgery

228 St. Charles Way, Suite 300

York P.A. 17402

Phone Number 717-812-5400

 

Dr. Mark Lavallee, M.D., C.S.C.S., F.A.C.S.M.
Family Medicine, Sports Medicine, Orthopedics

 

Practice / Clinic 1
Thomas Hart Family Practice Clinic (Ehlers-Danlos Clinic)
Marie Ketterman Building at York Hospital
1001 South George Street
York, PA 17403

 

 

Practice / Clinic 2
Sports Medicine (non-surgical orthopedics)
2319 South George Street, York, PA 17403

 Phone Number 717-851-2521

Affiliations: Ass’t Clinical Professor, Pennsylvania State University,

College of Medicine, Hershey, PAAdjunct Clinical Professor,

Drexel University, School of Medicine, Philadelphia, PA

Member of the International Consortium on EDS and Related Disorders.

 

 

 

Kenneth Liu, MD, FAANS, FACS
Neurological Surgery, Neurovascular Surgery
Penn State Milton S. Hershey Medical Center
30 Hope Drive
Hershey, PA 17033
717-531-3828

Affiliations: Penn State Milton S. Hershey Medical Center

 

 

Michael Healy, PT, DPT, DOMTP, IOMT, CPT, CSN, MBA
Physical Therapy, Advanced Manual Therapy, Craniosacral Therapy, Sports Medicine
Healy Physical Therapy & Sports Medicine, Inc.
927 B Warren Avenue
East Providence, RI 02914
401-438-0905

 

 

Dr. Pradeep Chopra, MD, MHCM
Complex Pain Medical conditions.
Brown M
102 Smithfield Ave., Pawtucket, RI 02860
401-729-4985 ext 211

 

 

Dr. Petra Klinge, MD, Ph.D., FAANS
Neurosurgery
Neurosurgery Department, Life span physician group, Rhode Island Hospital
593 Eddy Street, APC 6th floor, Providence, RI 2903
401-464 2411

Affiliations: Rhode Island Hospital,Hasbro Children's Hospital

 

 

Kevin Muldowney, PT
Physical Therapy

Practice / Clinic 1
Muldowney Physical Therapy

667 Atwood Ave, Cranston, RI 02920
 

Practice / Clinic 2
Muldowney Physical Therapy North
261 Main Street, North Smithfield, RI 02896

401-766-0022

 

 

Susan Chalela, MPT
Physical Therapy for EDS and hypermobility, ergonomics, neuro, ortho, pilates, posture, osteoporosis
Fyzical Therapy and Balance Center Charleston
125 River Landing Dr.
Suite 103, Daniel Island, SC 29492
843-377-8210

 

 

Jessica Huddleston, LPC-MHSP
Neuropsychological evaluations, Psychological evaluations, Counseling

Practice / Clinic 1
Sabin Behavioral Health
695 President Place Ste 202, Smyrna, TN 37167

 

Practice / Clinic 2
Sabin Behavioral Health
404 N Castle Heights Ave
Ste F, Lebanon, TN 37167
615-269-4990

 

 

Dr. Sarah Kelly, MD
Internal Medicine, Pathology (not actively practicing)
The Kelly Clinic
5503 FM 359, Suite C, Richmond, TX 77406
281-828-0675

 

 

Dr. Miriam Sturgis, MD
Family Practice
Northwestern Georgia Health Center
4178 Highbridge Rd.
Fairfax, VT 05454

 

 

Dianne Villani, APRN
Family medicine, functional medicine
Trillium Integrative Medicine, 366 Dorset St. Suite 10
South Burlington, VT 05403
802-654-3562 

 

 

Patrick Agnew, DPM
Podiatric Medicine and Surgery
Coastal Podiatry Group and Eastern Virginia Medical School
6477 College Park SquareSuitee 102-108, Virginia Beach, VA 23464
757-523-0414

Affiliations: Sentara Norfolk General Hospital

SENTARA Leigh Memorial Hospital, Children's Hospital of the Kings Daughters

 

 

 

Christopher Johnson, MSW, LCSW, BCD
Psychology, Psychotherapy, Substance Use Disorders, Sexual Trauma, Chronic Pain, Co-Occurring Disorders
Therapy by Chris
11350 Random Hills Road, 8th Floor, Fairfax, VA 22030

 

 

Bryce Lee, DPT
Physical Therapy, Supervised Strength Training
StrengthSpace, LLC
1512 Technology Drive. Suite 102. Chesapeake, VA 23320
757-828-5627

 

 

Amanda Miller Avila, PT, DPT, WCS
Physical Therapy, Pelvic and Abdominal Health
Progress Physical Therapy – Midlothian
2436 Colony Crossing Place, Suite 2
Midlothian, VA 23112
804-918-8515

 

 

Kristina Page, LMT
Massage Therapy
Nimbus Massage
1719 W. Main St. Richmond, VA 23220
804-714-7932

 

 

Robin Zachary, LMT
Massage Therapy
Nimbus Massage
1719 W. Main St., Richmond, VA 23220
804-714-7932

 

 

William Ericson, MD
Orthopedic hand/upper extremity surgery
Ericson Hand and Nerve Center
6100 219th St. SW, Suite 540
Mountlake Terrace, WA 98043
425-776-4444
Affiliations: Evergreen Hospital Medical Center, Kirkland, Overlake Hospital, Bellevue, WA

Member of the International Consortium on EDS and Related Disorders.

 

 

Sherene Shalhub, MD MPH FACS
Vascular Surgeon
Vascular and Endovascular Surgery Clinic at UWMC
1959 NE Pacific St., 1st Floor
Seattle, WA 98195
206-598-4477

 

Ian Wallace, MS, CGC
Genetic Counseling, EDS diagnosis
Pullman Regional Hospital
1620 SE Summit, Pullman, WA 99163
509-332-5106

 

 

Dr. Linda Bluestein, MD
Anesthesiologist, Pain Management, Integrative Medicine
Wisconsin Integrative Pain Specialists
601 S 32nd Ave. Wausau, WI 54403
715-600-1722

Affiliations: Aspirus Wausau Hospital

 

 

Dr. Sumana Koduri, MD
Urogynecology, Female Pelvic Medicine, and Reconstructive Surgery
Medical College of Wisconsin
Froedtert Memorial Lutheran Hospital clinics
9200 W. Wisconsin Ave., Milwaukee, WI 53226

414-805-8603

Affiliations:

Froedtert Memorial Lutheran Hospital, Milwaukee, WI, USA

St. Joseph’s Hospital – West Bend, Wisconsin, WI, USA

Member of the International Consortium on EDS and Related Disorders.

 

 

Dr. Nathan Rudin, MD, MA
Physical Medicine and Rehabilitation, Pain Medicine
UW Health Pain Management Clinic
1102 S Park Street, 3rd Floor, Madison, WI 53715
608-263-9550

 

 

 

 

 

 

 

Sources: 

 

https://www.ehlers-danlos.com/medical-professionals-directory

 

Dysautonomia International

 

Fellow Zebras, If you would like to add someone to this list, please send me their info at edslife2019@gmail.com. Thank you from the staff at Wetzels's EDS Life.