Disclaimer

The content on this website is for educational purposes only and should not be used as a substitute for medical advice. Please consult with your healthcare provider prior to initiating any of these treatments. The use of this website does not imply nor establish any type of doctor-client relationship.

Updated 10-06-19

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©2019 by Wetzel's EDS Life.  Some images and videos may be from other sources, I do not claim ownership of them. If the owners of the different types of media wish for me to take them down, please email me at edslife2019@gmail.com with the specifics information and I will be happy to do so. It is my hope that posting pictures from multiple sites and sources will help spread awareness.

Have a questions or want to report something? Send me an email at edslife2019@gmail.com
John A. Wetzel, Founder and Chairman of Wetzel's EDS Life

John was diagnosed in 2009 while serving in the U.S. Army while stationed at Ft. Hood, T.X.

He has always had a fascination with science, but getting a diagnosis of what was considered at the time a rare disease, would propel him into a journey of unforeseen proportions. Shortly after receiving his diagnosis, John was medically retired from the army. Anyone who is given a life-altering medical diagnosis will tell you, learning all you can is your subconscious way of trying to regain some control in your life.  EDS is not well researched so information is limited so learning about it can become challenging. John poured of medical text for the next year, going to the VA hospital and trying to get some answers and decent treatment for all the symptoms he was experiencing. 

 

He was now living in York PA where he resides today. The VA hospital is located about an hour away, but he is unable to drive for medical reasons so it made more sense to have all of his treatment done with WellSpan. He uses the health insurance the Army gave him in his retirement package and they are more equipt to handle the specialized care that he requires. Because of the great team of doctors whos care, he is now under, John's seizures are well controlled. He may have one or two a year. Also, his pain is well managed as is the EDS. He was recently diagnosed with POTS, MCAS, and TMJ. He is currently undergoing testing to see what the best course of action for treatment will be. 

He was now living in York PA where he resides today. The VA hospital is located about an hour away, but he is unable to drive for medical reasons so it made more sense to have all of his treatment done with WellSpan. He uses the health insurance the Army gave him in his retirement package and they are more equipt to handle the specialized care that he requires. Because of the great team of doctors whos care, he is now under, John's seizures are well controlled. He may have one or two a year. but they are minimal. Also, his pain is well managed for the most part, as is the EDS. He was recently diagnosed with POTS, MCAS, and TMJ. He is currently undergoing testing to see what the best course of action for treatment will be. 

John has repeatedly wanted to pursue a career in medicine, but something always seemed to get in the way, mostly health issues. But not anymore. John and his wife Tara are both enrolling in nursing school. John wants to practice nursing, and eventually become a Nurse Practitioner. But he also has another goal. Rare and invisible diseases are just that, "Rare or Invisible". And so is the public and medical communities' knowledge of them. Things have come a long way in the medical community over the past five years. Patients are noticing medical professionals, especially the younger ones are more familiar with the Zebras. This is a huge step in the right direction. What is John's goal? To make these diseases as well known to the public as Cancer, Heart Disease and Diabetes.  

The VA healthcare system did its best to accommodate John and his family supported him every step of the way. At the beginning of 2013, he moved closer to the VA hospital in Lebanon, P.A. He was frequenting the E.R. more often and this would allow him to be able to do so more efficiently and be treated by the medical team that was overseeing his primary care. 

In 2014 he met a woman who changed his life forever. During the year 2014, he spent a cumulative amount of about a month and a half in the hospital for seizures, pain issues, and other problems. Eventually, he started getting all of his treatment at WellSpan Medical, a group that operates in P.A.

John is a dreamer. But he is also a man of action, and when he gets an idea in his head, it is very hard to change it. John created two support groups on Facebook when he was first discharged from the Army. He saw how these groups grew and they helped him through some dark times in those first few years after being discharged. He also saw how they helped others. He took a step back after a few years and let others manage the groups while he took care of his health and got back on track. When he stabilized, got his life in order he came back, became more active in the EDS community and started to get the itch for knowledge again, John has many interests, World history, ancient history, war history, science, physics, engineering, drafting, and of course, medicine. 

This Website is the first stepping stone across the pond. He and others are working hard, building a foundation to help raise awareness and money to fund research for these "Rare" and "Invisible" diseases. Maybe someday if effective treatments or cures are found, they can even find a way to help patients obtain them. But nothing comes free. Hard work and dedication are paramount in a venture like this. Please Sign up on our site and join our zebra registry if you or a loved one has EDS. Check us out on Facebook and share our page with your friends and family. 

Questions?

Here at Wetzel's EDS, we try to help those with questions find the answers or the resources to find those answers. If you have a question, write and submit it and I will get back to you as soon as I can. This service is not meant to diagnose, treat, or cure any illness. This should be done by a licensed physician, Please sign up at the bottom of the page to get regular emails about the latest in medical news, EDS, POTS, MCAS and medical treatments.Thank you for your patronage.