Madora Pennington, Head of Research
When you are first diagnosed with Ehlers Danlos Syndrome or any disease or disorder, you feel alone, confused and powerless. And do anything to gain some level of control. This was something that I did, as did many Zebras that I have met and talked to over the years. And one of the better things to come out of being diagnosed with Ehlers Danlos Syndrome is that I have made many friends all over the world. One of these friends is Madora Pennington.
Madora is a unique individual. And she has come upon a treatment for EDS that I don't think any of us ha ever heard of before. I haven't heard of it, Not to toot my own horn but I consider myself well read since I read medical journals and do research on a daily basis. But this treatment consists of injecting intra-muscular Vitamin C and it has been proven to increase muscle strength, bone strength, and connective tissue matrix. I am looking into this treatment for myself. We have recently decided to partner up in hopes that more people can learn about this treatment option and also spread awareness about EDS and related illnesses.
It is our hope that our collaboration will bring more groups into the fold and we will create a network of Zebras in which we can share information about EDS, related illnesses, treatment options, and act as a platform for patients to freely discuss what they are going through and have someone to talk to who truly understands what they are going through because they have been there themselves. Click the button to the left to go to her website and see the information she has to offer. It is awesome!