Parent and Teacher Resources for Students with EDS
When you have children, you want to give them every opportunity to succeed. It is human nature to protect our children. When they go to school, we rely on the educators and administrators of the school system to help fill that role. Having a child who has unique medical or physical needs doesn't need to have difficulties in school because their teachers and peers simply do not understand their condition.
Ehlers Danlos Syndrome is a complex disease. No two cases are identical. It can involve a complex range of other conditions within other systems of the body. Ehlers Danlos Syndrome is a connective tissue disorder, caused by various mutations in various genes. As a result of this wide range of mutation possibilities, identifying the type of EDS is critical in creating an effective treatment.
Here are some links to some sites that can give some insight into EDS, and the other conditions that can go along with it. As said before, EDS is a complicated condition. And new symptoms can appear over time. Recognizing these symptoms and bringing it to the attention of the parents will lead to recognizing and managing the condition efficiently. Please explore the site. We are constantly updating and adding new content on a regular basis and our related conditions library is ever growing.
It does take a lot of time and research to create these pages on the related conditions, so please bear with us. And if you come across a condition that you feel warrants addition to the library, please send us a message with your idea at firstname.lastname@example.org.
By establishing an effective treatment, the child can have a better quality of life and lower the chance of complications. Schools coordinate with the parents and physicians of the student on being educated about a students condition, limitations, and unique needs. Special equipment can be brought in by the school, or other parties if needed.
Some of these examples can include walkers, wheelchairs, crutches, utensils with larger handles, writing instruments to limit the discomfort of writing, and so forth. Each school has certain vendors that they deal with to requisition equipment needed to accommodate the student's needs.
https://www.gemssforschools.org/ Ehlers Danlos Society verywellhealth.com skillsforaction.com U.S. Dept. Of Education