Disclaimer

The content on this website is for educational purposes only and should not be used as a substitute for medical advice. Please consult with your healthcare provider prior to initiating any of these treatments. The use of this website does not imply nor establish any type of doctor-client relationship.

Updated 10-06-19

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©2019 by Wetzel's EDS Life.  Some images and videos may be from other sources, I do not claim ownership of them. If the owners of the different types of media wish for me to take them down, please email me at edslife2019@gmail.com with the specifics information and I will be happy to do so. It is my hope that posting pictures from multiple sites and sources will help spread awareness.

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Reynaud's Phenomenon 

Diagnosing Raynaud's Syn.

Diagnosing Raynaud's Syndrome is done by looking over the patient's history. Looking for indicators of whether it is Primary or Secondary. Indicators for Secondary would be a connective tissue disorder, autoimmune disease, vascular disorder, so forth. They will also look into whether the patient experiences this more often when it is cold, whether they do a hobby or profession that requires repetitive motions or the use of tools that put off vibrations such as power tools. 

 

The physician may ask the patient to keep a symptom diary of a period of time to see what triggers the attacks. This can clue them in on what the triggers are and give them a more definitive answer. The physician can look at the patient's digits under a microscope for altered, enlarged, malformed or damaged capillaries.

 

A blood test can also be performed to measure the erythrocyte sedimentation rate which may indicate an autoimmune problem which would require further investigation. The blood test can also allow the doctor to inquire about antinuclear antibodies within the blood sample. 

Treatment

The treatment for Raynaud's Syndrome can vary based on the severity of the disease in the individual. All of the options that are available are:

 

~Amlodipine, Diltiazem, Felodipine, Isradipine, Nicardipine Nifedipine, Nisoldipine, Verapamil which are Calcium Channel Blockers

~Vasodilators such as Viagra, Nitroprusside, & Tadalafil.

~Topical Nitroglycerin

~Nerve Surgery (In Rare Cases)

~Alpha-Receptor Blockers which are traditionally used to treat hypertension.

~Keeping a healthy diet

 

Things you can do:​

~Staying out of the cold, This is easier said than done especially in the winter time.

 

~Dress for the weather. Layer up and buy gloves that have a mitten pull over to provide extra insulation for your fingers. Also, gloves that are water resistant are a good investment.

 

~Have a good set of well-fitting shoes and warm socks. Wearing shoes that look good but provide little protection is really not a wise choice when you have Raynaud's Syndrome. There are plenty of options on the market today that offer both style and warmth and won't break the bank.

 

~Have a couple of sets of warm socks. The material is up to you, some people like wool, some like cotton, some like a blend. whatever keeps your tootsies warm is all that matters. Having socks that come up to at least above the ankle is a good call.

 

~If the weather is gonna be wet and cold, bring a spare set of socks and shoes.

 

~In warm weather, try to avoid grabbing ice cold glasses, being in direct contact with air conditioning. These sort of things can set off an attack.

 

~Keep a glove near the freezer so if you need to grab something out of it, you don't set off an attack and you will provide yourself with some protection. It may sound silly but you will be glad further down the road.

 

Avoid sudden temperature changes. For example. If you go from 90 degrees outside to 65 degrees in an air-conditioned office, this can set off an attack. Protect yourself accordingly.

 

I hope that this is helpful to those of you who may have this disorder. I cannot speak from personal experience, though I do know a few who do. If you have anything you would like me to add, please send me a message. You should discuss all of these options with your Doctor. They can help you create the best treatment care plan that is tailored to fit your personal needs.

 

What works for someone else might not work for you.

 

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