NOTICE: Our webmaster and Chairman John Wetzel will be undergoing 2 surgeries in the second week of October. One is to place a long term IV access port in his chest as his veins have become so fragile they can not hold a traditional, peripheral IV. The other surgery is to place a new spinal stim implant. A couple months ago, he had a revision done and the new battery caused him to become septic so it had to be removed Now that he is healed and tests prove negative for active MRSA, he can get the implant put back in so that his pain will be better managed.
During this time, the new content may not be uploaded for some time as recovering from surgery is very taxing and exhausting. Please bear with us and check our facebook page frequently for updates on new content. Remember flu season is coming upon us and now would be a good time to get that flu shot. We hope you all have a great month and as always, have a pain free day!
Welcome to Wetzel's EDS Life!
We are all told "Live Life To The Fullest". And we aim to help you do just that. Ehlers Danlos Syndrome is a complex and difficult condition to live with and manage. And we are big believers in having the latest and comprehensive information available for those who have it and their families.
Our website is aimed to help make your life easier in any way that we can. And to spread awareness about Ehlers Danlos Syndrome and conditions that are often related to it. EDS is said to be an umbrella term. There are currently 16 types of EDS. Each type presents with its own set of symptoms and complications. And more often than not, there are other conditions that affect the patient other than the EDS.
We hope that spreading awareness will result in an effective treatment and hopefully a cure someday,
Do you have Gastroparesis?
Gastroparesis is a common issue among EDS sufferers. It is a digestive system disorder that can be painful and debilitating. Malnutrition, nerve damage in the lower digestive system, and a slow-moving gut are just a few of the symptoms associated with this disorder. In most cases, it is secondary to another disorder.
EDS is not the only disease that can have gastroparesis as a secondary condition. However, we intend to focus on EDS associated gastroparesis. Please check back on a regular basis to see new information and links on Gastroparesis. Spreading awareness about this condition along with EDS and all the "invisible" diseases and disorders is our goal. Please subscribe and get regular updates about new content. And have a pain free day!
The Governor of Wisconsin has proclaimed in writing that May is Officially Ehlers-Danlos Awareness Month in Wisconsin!
Thank you Liz Sotherland in Whitewater and EDS Wisconsin Inc for a link to a copy of the official Proclamation! Download and print your copy here https://drive.google.com/…/12m3u8UDyPJxrX23iZGY6RPLCS…/view…
Join our EDS Data Base!
Thanks for your patronage. We are trying to create a database of sorts to link more Zebras together so that we can support and share info with each other. Please only insert your information if you or a loved one who has EDS wants to be added to this database. Patrons will have access to this information so they can find Zebras in their area once I have compiled enough names, I'm shooting for 20.
If you would like to, please send me a message by clicking on the bar to the right It may take me a little while to compile a database, It depends on your responses. I look forward to talking to all you fellow Zebras.
Succes Through Adveristy!
When you suffer from an underdiagnosed or rare condition, you can feel powerless, and isolated. It is not uncommon for medical professionals to not be informed about complex diseases and conditions in other fields of medicine than their own.
To give back that power to people with these conditions is our goal. I tell people all the time, "The best way for your doctor to help you, is for you to help your doctor help you". Having access to accurate, credible information can do just that. Doctors spend years in school and residency. And the human body is a very complex machine. By making information about EDS and it's related conditions easy to access in one central source, it is our hope that patients can take back their lives and live them to the fullest. No one should have to suffer because of ignorance.
We work very hard and tirelessly to find the latest information and breakthroughs so you don't have to spend hours in a search engine. By spreading awareness, we can help to relieve the suffering for all. Knowledge is power and when it's used properly, it makes all the difference in the world.