Disclaimer

The content on this website is for educational purposes only and should not be used as a substitute for medical advice. Please consult with your healthcare provider prior to initiating any of these treatments. The use of this website does not imply nor establish any type of doctor-client relationship.

Updated 1-18-2020

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©2019 by Wetzel's EDS Life.  Some images and videos may be from other sources, I do not claim ownership of them. If the owners of the different types of media wish for me to take them down, please email me at edslife2019@gmail.com with the specifics information and I will be happy to do so. It is my hope that posting pictures from multiple sites and sources will help spread awareness.

Have a questions or want to report something? Send me an email at edslife2019@gmail.com

All of us Here at Wetzel's EDS Life would like to wish a very Happy Holiday Season. This is a time for being with friends and family and celebrating your preferred holidays. But as you all know, winter can be very hard on Zebras. A couple of things to remember that will make navigating winter a little easier and safer. Have some sort of ice melt on hand so you don't slip on slippery surfaces. It is also handy when you are low on spoons but need to do something about the ice.

Also, don't push yourself harder than you can handle. Recovering from over-doing it in the winter is harder and takes longer. Happy Holidays and Have a pain free day!

Welcome to Wetzel's EDS Life!

We are all told "Live Life To The Fullest". And we aim to help you do just that. Ehlers Danlos Syndrome is a complex and difficult condition to live with and manage. And we are big believers in having the latest and comprehensive information available for those who have it and their families.

 

Our website is aimed to help make your life easier in any way that we can. And to spread awareness about Ehlers Danlos Syndrome and conditions that are often related to it. EDS is said to be an umbrella term. There are currently 13 types of EDS. Each type presents with its own set of symptoms and complications. And more often than not, there are other conditions that affect the patient other than the EDS.

 

We hope that spreading awareness will result in an effective treatment and hopefully a cure someday,

The Governor of Wisconsin has proclaimed in writing that May is Officially Ehlers-Danlos Awareness Month in Wisconsin! 
Thank you Liz Sotherland in Whitewater and EDS Wisconsin Inc for a link to a copy of the official Proclamation! Download and print your copy here https://drive.google.com/…/12m3u8UDyPJxrX23iZGY6RPLCS…/view…

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Join our EDS Data Base!

Thanks for your patronage. We are trying to create a database of sorts to link more Zebras together so that we can support and share info with each other. Please only insert your information if you or a loved one who has EDS wants to be added to this database. Patrons will have access to this information so they can find Zebras in their area once I have compiled enough names, I'm shooting for 20.

 

If you would like to, please send me a message by clicking on the bar to the right  It may take me a little while to compile a database, It depends on your responses. I look forward to talking to all you fellow Zebras.

Questions?

Here at Wetzel's EDS, we try to help those with questions find the answers or the resources to find those answers. If you have a question, write and submit it and I will get back to you as soon as I can. This service is not meant to diagnose, treat, or cure any illness. This should be done by a licensed physician, Please sign up at the bottom of the page to get regular emails about the latest in medical news, EDS, POTS, MCAS and medical treatments.Thank you for your patronage. 

Our Mission

Succes Through Adveristy!

When you suffer from an underdiagnosed or rare condition, you can feel powerless, and isolated. It is not uncommon for medical professionals to not be informed about complex diseases and conditions in other fields of medicine than their own.

To give back that power to people with these conditions is our goal. I tell people all the time, "The best way for your doctor to help you, is for you to help your doctor help you". Having access to accurate, credible information can do just that. Doctors spend years in school and residency. And the human body is a very complex machine. By making information about EDS and it's related conditions easy to access in one central source, it is our hope that patients can take back their lives and live them to the fullest. No one should have to suffer because of ignorance. 

We work very hard and tirelessly to find the latest information and breakthroughs so you don't have to spend hours in a search engine. By spreading awareness, we can help to relieve the suffering for all. Knowledge is power and when it's used properly, it makes all the difference in the world.